So. So. Um....
Clinic was last Friday. They did not have my bone density results (of course) and I had a massive fail on getting lab work done before, so not the most productive visit. I did feel very cared about though, something I have complained about with them before. They were quite concerned that I am not back to my old self post miss piggy. My doc ran something by me about viral myopathy which my google-fu fails me in finding good answers to that. I did get my labwork (blood, includng all vitamin levels and cholesterol (have not had that checked in YEARS)) and sputum done friday. had my bone density sent to them again and my last xray results as well, so if anyting is amiss, hopefully we will find it.
I am down to 118. I was 136.9 in March, so this is good, though of course everyone freaks out that I have been losing weight for 6 months. I am TRYING to people, even CFers can get big and can be vain. Anyway, I am Ok with 118, though I would not be sad if another 5 lbs or so slipped off - though I gotta say, I was glad I had some to spare during the big INFLUENZA debacle.
My PFTs were at 71, which is actually down from 74 and is also a week post IVS, which tells ME that something is still off, that or, as I suspected, H1N1 ate part of my lungs when it visited.
Last night when I nebbed and vested I had my first post IV welcome back mucoid PA moment, and today I swear fo' gawd I can feel it. I am tired and achey and just off. boo.
But I thik my 'tude is fixed, mostly. I am not in quite such a hole as I was, so that is good. I just want to "fix" whatever is wrong. I guess that prolly won't happen, not unless little green guys kidnap me and take me to their planet...or wait...I think I just spit a few of those guys out earlier. yum.
Showing posts with label PA. Show all posts
Showing posts with label PA. Show all posts
Monday, November 16, 2009
Tuesday, July 14, 2009
you'll get anything with that evil smile
When I signed in I felt like I had something important to say, but I don't.
I can feel the PA regrowth a lot this last week, as I get closer to my next round of Colistin (my third). Interesting yet sucky. Makes it so obvious I NEED the drug, I can't put it off.
I turned 32 yesterday. 32 is weird, Cf aside. I've never minded getting older, even when I wasn't paying too much attention to Cf. I think part of it was I always looked young, and I hated it. It seems funny to me now when I think about how upset that made me. I mean when I was 12 my dad would tell people I was 8 to get me into places for free and no one ever batted an eye. When I was 20 he tried the same move to get me into The Louvre for free. When I was like 14 it was hard to try to get older boys to like me (as every 14 year old girl desires) because I looked 10.
Though it is sad to report that the world of looking younger ended about age 29. Now I rarely get carded. Maybe I get mistaken for 29, but rarely that (what was interesting is I went salsa dancing a few weeks ago with my friend and this boy Salvador was flirting with me (so exciting for an old married gal!), he was about twenty three or four and for some reason he was guessing my age - I think I told him I was married and too old for him - anyway, he guessed it at 27 - which means you know he was trying to be nice without being ridiculous...so 27 seemed kind of old for him to guessing at out of kindness, if that makes sense. Ah, vanity.
I digress, I don't mind birthdays.
Mt step son had a baseball game today, league championship, and they won. Exciting.
My boy has his championship swim meet tomorrow. He is swiiming fly, back, breast, and free. He won't do great, but maybe there is hope he could place in the top 12. (I also thought he could win the triathalon and he was like 56 out of 86, so not near the top. I have moon eyes for the kids). We have to be there at the crack of dawn. bah.
The baby got her first haircut today. She looks so old. (in referene to the earlier portion of this post, she doesn't actually look old at all, she looks about 2.5, her age, she just looks less baby and more kid)
I get a new camera for my brithday - my other one broke after a spill on the ice at Christmas time, so pics soon to follow. Until then, I leave you with Mona.
I can feel the PA regrowth a lot this last week, as I get closer to my next round of Colistin (my third). Interesting yet sucky. Makes it so obvious I NEED the drug, I can't put it off.
I turned 32 yesterday. 32 is weird, Cf aside. I've never minded getting older, even when I wasn't paying too much attention to Cf. I think part of it was I always looked young, and I hated it. It seems funny to me now when I think about how upset that made me. I mean when I was 12 my dad would tell people I was 8 to get me into places for free and no one ever batted an eye. When I was 20 he tried the same move to get me into The Louvre for free. When I was like 14 it was hard to try to get older boys to like me (as every 14 year old girl desires) because I looked 10.
Though it is sad to report that the world of looking younger ended about age 29. Now I rarely get carded. Maybe I get mistaken for 29, but rarely that (what was interesting is I went salsa dancing a few weeks ago with my friend and this boy Salvador was flirting with me (so exciting for an old married gal!), he was about twenty three or four and for some reason he was guessing my age - I think I told him I was married and too old for him - anyway, he guessed it at 27 - which means you know he was trying to be nice without being ridiculous...so 27 seemed kind of old for him to guessing at out of kindness, if that makes sense. Ah, vanity.
I digress, I don't mind birthdays.
Mt step son had a baseball game today, league championship, and they won. Exciting.
My boy has his championship swim meet tomorrow. He is swiiming fly, back, breast, and free. He won't do great, but maybe there is hope he could place in the top 12. (I also thought he could win the triathalon and he was like 56 out of 86, so not near the top. I have moon eyes for the kids). We have to be there at the crack of dawn. bah.
The baby got her first haircut today. She looks so old. (in referene to the earlier portion of this post, she doesn't actually look old at all, she looks about 2.5, her age, she just looks less baby and more kid)
I get a new camera for my brithday - my other one broke after a spill on the ice at Christmas time, so pics soon to follow. Until then, I leave you with Mona.
Friday, December 26, 2008
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