take these broken wings

My hives are much much better thanks to zantac. Who would have known an acid reflux med is also an antihistamine (it is an H2 blocker, as opposed to benadryl which is an H1 blocker, I have been edjumacated). So combined with the benadryl, I have been OK today. I still look lkinda red and funky but nothing is raised or itching too much today.

More importantly, I am posting about one of my LJ friends, Eva. Eva is 2 years post tx and is now in chronic rejection. I think she is down into the teens for her lung function. Tonight she is going into the hospital because she is having too much trouble breathing. I am praying for her tonight.

i think her Lj journal is public if you're not familair with her. She was also in the documentary "65_redroses" which will be seen on Canadian TV on November 16th.

I've been feeling really defeated by CF lately, physically and emotionally, personally and extrinsically. I just want to fix us all.

itchy and scratchy

Hives, day 3



Yeah. I am not suppossed to complain. right? I am now taking zantac, which is an H2 blocker and benadryl which is an H1 blocker. So far, not stellar results.
No more penicillians for me. I can't imagine this getting better with consecutive tries. And from what I read, desensitation might not work with delayed allergic reactions....which means, perhaps, I am screwed. c'est la vie custique. (vie de merde, no?)

my hands are swollen like little red balloons, my neck looks like I have ringworm, and my face looks like that guy on "Something About Mary" you know which one I mean, right?

PLease go away, hives.

sitting here in limbo, like a bird without a song

So, you know, when it rains, it pours.

I have hives, I assume from the zosyn - I also got hives from augmetnin and ceftazadime(dine?), so I assume this is a penicillian thing.



Also, I am low on creon, In fact my purse stash ran out and last night we were at a birthday party when I realized I didn't have any and there were none in my husband's truck. So I made the stupid decision to go ahead and eat a hamburger without. I hardly ever eat without enzymes. Today I remember why.

I have only 8 creaon left at home. So I called in a refill.

Upon pick-up, the pharamcy told me my creon rx was declined due to price by my insurance. They have declined it before, often saying I am getting "too many." Usually I and lightly bitch and they fix it. I always assumed it was because I was trying to refill before my 30 days wre up, as is sometimes the case.

Anyway, when I called, the gal on the phone said it had to go to administrative review and would take 24-48 business hours to be resolved.

Dear readers, I have never "cussed out" a person in my life. In fact, I am very kind to the poor fools who answer phones at these kind of places because I know they are just little inefficent cogs in what is usually a square wheel. But I just came unglued. I was in the car at the Walgreens parking lot scratching my hives, woth a stomach ache and now crying and I think I said something to the effect that I had to have my medcine immediately. I could not fucking wait 48 hours and that by doing so they were inadvertantly trying to kill me and could expect to have a huge lawsuit on their hands, etc. I am kind of embarrassecd now.

But the woman on the othe end was kind and she kept her cool and apologized (and so did I) and she explained that since my rx was over $1500 it required an adminstrative override. I have only been taking this many creon for about a year now and I guess on business days sometimes Walgreens handles this for me, which is why this denial was happening sometimes and not others. I ended up getting a 24 hour supply from Walgreens. Nice or not, that rx company can bite my hived up ass.

So world, while I did walk about a mile yesterday and today and the weather has been superb, my nerves are a bit on edge and my tears are flowing easily. There is no where to go but up.