Clinic today. PFTs were 74% - woot! That's the highest in years. Weight was 131.9 though - WTF. I am getting my thyroid checked first off. I was 116 in June! And I have been swimming religioulsy since September. Depressing.
Anyway, I am going to list my PFTs as I got some copies of old labs. I find them very interesting.
agePFT (FEV1)
31 74 (Dec. 2008)
31 72
30 64
30 54
30 50 (Nov. 2007)
29 57
29 61
29 64 (Nov. 2006)
28 61
28 64
27 54
27 58
26 63
26 57 (25-75 18%)
25 60
25 54 (Nov. 2002)
24 53
24 53 (Nov. 2001)
23 61
22 52
22 60 (7 months pregnant/ Sats 93 on room air)
21 54
18 75
16 96 (25-75 130%)
What concerns me here is this big drop between 16 and 21 (hello marijuana, how are you?) - but watch, it gets wierder
15 91
14 70 (what was behind the big jump up to 96???)
12 81 (big drop,again)
12 82
11 81
11 43
WTF happened here?? Was I sick? sats were 89 - I must have been sick...perhaps IVs would have been a nice touch here?
11 70
10 65
10 58
I am not sure what to think of all this. Look at all the years I spent in the 50s and not aware of it. Makes my 74% today all the sweeter.
A few interesting Doc notes I thought I'd share:
"Over time it is my goal to educate her as best as possible to take more ocntrol of her disease and look at modalities to help her. She is certainly a very bright young woman and in time she will begin to understand this better."
That was in 1996, I was 19. Took me another 10 years to figure it out.
and this from 1994 "I did suggest that she have a screening chest x-ray and chem profile, CBC and PT/PTT anually to screen for liver disease, diabetes and occult lung disease which may not be apparent clinically ot her. They'll consider this, although she's somewhat resistant and even with the minimal linitations that she has she seems to resent her disease a great deal."
3 comments:
Wow, Shannon, that IS interesting!! There are definitely some unexplained ups and downs in there. But overall, you seem to be trending UP as you take better care of yourself. That's great news!
I have also been working on getting my old medical records...what a trip some of the doctor comments are! I, also, had an insight like you: "I suggested to Laura that she start cycling Tobi..." - and it wasn't until TEN years later that I started doing that. I had a lot of resistance. Guess that's part of growing up with CF, eh?
XO,
laura
I bet you can attribute a good bit of that weight to building lean muscle mass from the swimming, especially if your clothes still fit about the same (at least that's how it worked for me)- and that's a good thing! ;)
Congrats on the pft's!
&ee
why wouldn't you resent the disease a great deal? i don't know how you felt about the dr's comment, but it would agitate me. the psychological impact of this disease is huge. i don't care how mild your symptoms are. btw, swimming is great. i bet your pfts continue to go up.
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